#chronic pain

thespoonfairy:

instead of people saying, “have you tried —” or “you should try—” i’d like people to say “i’m so sorry you have to deal with this crap, it’s not fair and you have every right to be upset. is there anything i can do to help?”


that would help.

Dear World,

When you pass me on the street, or see me in the grocery store, and you think I don’t like you or I’m a raging bitch because I have a scowl on my face, please know that the reason I look like that is because I am in pain all the time and while I do my best to smile at strangers, sometimes I forget or it’s just too hard. It’s not you. It’s me.

My head hurts so much but I’ve already taken liquid Oxycodone and any more opiates will make me itch like crazy. How does 1mL Oxy not even touch my pain? How?

(via tacotasha)

ms-shapes:

My week summed up in one sentence: Goddamn I’m tired of hurting.

flaresof-fibro:

.

socialjustinope:

You know what is worse than feeling the pain, though? 

It’s when you can’t complain about it anymore. When people feel pain, they complain, get better and that’s it. People get annoyed at you because your problem won’t go away like theirs go. Saying just as much as “I need to sit down for a while” will make people roll their eyes at you.

(via mellystar92)

  • Healthy People: I hate my body!
  • Spoonies: My body hates me!
  • Healthy People: I hate my job!
  • Spoonies: I wish I could work!
  • Healthy People: I stayed out too late; I'm so tired today!
  • Spoonies: I washed my hair today; I'm too exhausted to do anything else!
  • Healthy People: Why are you depressed?
  • Spoonies: There's no "trigger" for depression; it's not just sadness. Depression happens because the chemicals in my head are screwy!
  • Healthy People: Why don't you ever want to do anything?
  • Spoonies: You have no idea how much I WANT to do stuff, I just CAN'T sometimes.
  • Healthy People: I wish I could stay in bed all day!
  • Spoonies: I wish I could get out of bed today!
  • Healthy People: Want to go see that new movie at the theater?
  • Spoonies: *thought process* well, there are 4 stairs to leave the house, 28 steps to the car, the car ride will probably aggravate my headache, more steps and more stairs once we get to the theater, two hours in an uncomfortable chair and $15 to watch a movie I'm probably not going to remember, anxiety from being around so many people, car ride home, getting back into the house...and I have maybe 2 spoons left today. How important is this person to me? Can I push through? Will (s)he mind if we just stay in and catch an older movie on TV?
  • Healthy People: If you were more active/ate better/lost weight/etc., maybe you would feel better
  • Spoonies: I'm doing everything within my power to feel better. Sometimes being active is impossible, what I eat is dependent upon what my body can digest, and weight loss is difficult when the first two are beyond my control.
  • Healthy People: I just read that this new diet/supplement/medication/alternative therapy/yoga pose/etc. can help people with your condition.
  • Spoonies: If there is something that has shown promise in my medical community, there are people who have tried it. I have likely tried it. I know you just want to help me feel better but you're making it seem as though there's some "magic cure" out there and I'm just not trying hard enough.
  • Healthy People: What doesn't kill you makes you stronger/God won't give you more than you can handle/Positive thinking/the power of prayer/any other cliche saying
  • Spoonies: Sometimes, what doesn't kill you makes you beg for death. Also, please don't quote scripture or talk to me about God and prayer if you aren't familiar with my religious beliefs. Not only might that be offensive to me but, also, this has seemed like more than I can handle for way too long.
  • Healthy People: Check out the new bag I bought!
  • Spoonies: *thought process* would all my meds fit in that?
  • Healthy People: How does my butt look in these jeans?
  • Spoonies: Oh, crap! Did I put on shoes today?
  • Healthy People: Doctor, what's wrong with me?
  • Spoonies: When we left last time, we were talking about this symptom I've been having. I did some research, I think it might be...... (and they're usually right!)

    • Fibro Spiral Out Of Control? Or is it all in my eye?

    wrappingmybrainarounditall:

    So, as I posted earlier today, I have pink eye in both eyes.  But that isn’t what this is about.  Do you all think that when you have Fibro  stuff like this can throw you for a loop?  I have had pink eye several times in my life and I usually do OK with it.  This time around…I feel like a bowling ball size eye smacked me right in the ass.  Such fatigue!  What are your thoughts?  Can milder things like this cause your Fibro to spiral out of control?

    Hell yes. When I get a simple head cold, for example, I am completely knocked on my ass for at least a week. I mean, we are already struggling with fatigue and chronic pain. Add anything on top of that and it’s the straw that breaks the camel’s back.

    chronicallyvegan:

    My young age does not negate the fact that I am in pain literally every second of every day.  My young age should not mean that I am denied the medications I need to be comfortable.  

    Diseases do not care that you are young, they will not be easier on you because of your age.

    I am not drug-seeking.  My pain is real.  I am just trying to live my life.

    (via valderie)

    heyatleastitsnotcancer:

    Chronic Illness problems:

    Being so completely exhausted and not being able to sleep.

    The things you take for granted, exhaust us..

    lupielucie:

    Showering,

    Getting dressed,

    Going to the store,

    The movies,

    eating,

    the doctors who work to save us,

    waking up,

    Getting a haircut,

    All the little things to you are mountains to us.

    (via sickgirldiary)