instead of people saying, “have you tried —” or “you should try—” i’d like people to say “i’m so sorry you have to deal with this crap, it’s not fair and you have every right to be upset. is there anything i can do to help?”
that would help.
When you pass me on the street, or see me in the grocery store, and you think I don’t like you or I’m a raging bitch because I have a scowl on my face, please know that the reason I look like that is because I am in pain all the time and while I do my best to smile at strangers, sometimes I forget or it’s just too hard. It’s not you. It’s me.
My head hurts so much but I’ve already taken liquid Oxycodone and any more opiates will make me itch like crazy. How does 1mL Oxy not even touch my pain? How?
My week summed up in one sentence: Goddamn I’m tired of hurting.
You know what is worse than feeling the pain, though?
It’s when you can’t complain about it anymore. When people feel pain, they complain, get better and that’s it. People get annoyed at you because your problem won’t go away like theirs go. Saying just as much as “I need to sit down for a while” will make people roll their eyes at you.
Fibro Spiral Out Of Control? Or is it all in my eye?
So, as I posted earlier today, I have pink eye in both eyes. But that isn’t what this is about. Do you all think that when you have Fibro stuff like this can throw you for a loop? I have had pink eye several times in my life and I usually do OK with it. This time around…I feel like a bowling ball size eye smacked me right in the ass. Such fatigue! What are your thoughts? Can milder things like this cause your Fibro to spiral out of control?
Hell yes. When I get a simple head cold, for example, I am completely knocked on my ass for at least a week. I mean, we are already struggling with fatigue and chronic pain. Add anything on top of that and it’s the straw that breaks the camel’s back.
My young age does not negate the fact that I am in pain literally every second of every day. My young age should not mean that I am denied the medications I need to be comfortable.
Diseases do not care that you are young, they will not be easier on you because of your age.
I am not drug-seeking. My pain is real. I am just trying to live my life.
Chronic Illness problems:
Being so completely exhausted and not being able to sleep.